National action · Every state and territory

NDIS CARERS ARE
STRIKING.
1 OCTOBER 2026.

For up to 6 hours from 9am to 3pm local time, carers across every state and territory are withdrawing unpaid care labour and handing responsibility for NDIS participants back to the federal MPs.

Strike begins in

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9:00am local time · 1 October 2026

0 carers, participants and supporters registered nationwide

Carers are striking on 1 October 2026 — NDIS Carer Strike campaign poster
01

Why we’re striking

The policy calls them safeguards, but the math doesn't make sense.

Up to 50%

Access to community life cut = social exclusion of disabled people. 

From 1 October, funding for social and community participation supports is being cut by up to half. That’s the money behind community access, transport, 1:1 outings and everyday participation that keeps people connected to the world.

Personal care and daily living supports are not touched — community life is. This puts disabled people back into the dark.

$215,030

A very precise threshold with specific conditions, ignoring entire co-horts of participants, most will miss out - the devil is in the detail.

The new s47a plan variation pathway is offered only to “high support needs participants” meeting a presise 'funding' (not need) threshold of $215,030 and receiving 24-hour funded (not need) support at a shared ratio of at least 1:3.

90 +21 + 21

Months pass before funding is assessed, NDIS always take longer to process than their service guarantee advertises.

The NDIA’s own process allows up to 90 days to submit the plan variation request, then 21 days to assess a plan variation request, then up to another 21 days for a decision on the plan variaton request. That's 132 days for the process in total - which is over 4 months! Participants can remain on reduced funding, with no reduction in need, for months.

Carers have been absorbing funding shortfalls unpaid for years. Carers are stepping back for up to one day so thier value can be seen. Government can experience what “stripped-back support” actually looks and feels like. Unpaid care should not be the default position to make the NDIS sustainable.

Read the government’s release
02

What’s happening on 1 October

For up to 6 hours

From 9am to 3pm local time, nationwide, at federal electorate offices.

Carers step back

Carers withdraw their unpaid labour for the day.

Care goes to government

Each participating carer delivers their NDIS participant to their own local federal MP’s electorate office, where care continues, unpaid, provided by electorate office staff.

What paid support is for

Paid support funding that participants still have is going to essential support at home. It is not being redirected to help government manage the strike.

Find your federal electorate office
03

How to take part, properly

This only works if it’s deliberate, not chaotic. This is a strike, not an ambush — the point is what the government does with clear notice, not what happens if we spring it on them.

Before you go

Duty of care starts with clear consent

  • This is a carer’s own action, taken voluntarily — no participant or family permission is needed for a carer to withdraw their own unpaid labour for the day.
  • Make sure the NDIS participant is aware their carer is taking part.
  • Give the electorate office a written copy of the participant’s support needs in advance, so “informal care” isn’t a mystery for whoever’s on the desk that day.

Participation in the campaign is entirely voluntary, for everyone involved. The National Carer Strike Committee accepts no responsibility or liability for participants’ care, safety or wellbeing during the strike — that sits with whoever is caring for them at the time, informally, at the electorate office.

What we need from you

  1. 01

    Show up at your local federal MP’s electorate office on 1 October, or support someone who is.

  2. 02

    Bring the participant(s) you support — this is your own voluntary action, you don’t need their permission to take part — but make sure they, or their family or guardian, know the plan. After you arrive, then you step back.

  3. 03

    Register so organisers can coordinate numbers, timing and the support information each office will need in advance.

  4. 04

    Tell another carer. This works because there are thousands of us.

“Without carers, the entire NDIS system stops working in a matter of hours. Canberra knows it. Today, we’re letting everyone else know.”
04

Our demands

1

The National Disability Insurance Agency and Australian Government take direct responsibility for the needs of disabled Australian's and stop transferring the caring load to families and loved ones.

2

The cuts to social and community participation funding are reversed before NDIS plans are affected.

The centrepiece

An Open Letter of Resignation

From a primary carer, to the Minister for Health, Disability and Ageing, and the Minister for the NDIS.

Download as PDF

Letter of Resignation

Re: Cessation of Unfunded, Unrostered, Unratio’d On-call Care Services

23 September 2026

To: The Hon Mark Butler MP – Minister for Health, Disability and Ageing, and the NDIS
Senator the Hon Jenny McAllister – Minister for the NDIS

I am writing to formally resign from my position as Primary Carer. The scope creep to Case Manager, Night Owl, Advocate, Interpreter of Jargon, Budget Ninja, Accidental Therapist, and Chief Search-and-Rescue Officer (Missing Continence Aids) is unsustainable. As you know, I have held this role for 20 years, unpaid, unbriefed and unratio'd. I submit that no exit interview is required, as you already hold several years of my feedback on file.

Notwithstanding my impending departure, I've had a chance to read (and re-read) your 22 September (yesterday) release on funding changes and safeguards, and I want to say: I admire the confidence. It takes a certain flair to reduce a vulnerable disabled person's community participation budget and call the document that explains it a 'safeguard'. I submit that's not policy writing, that's branding. Please pass my compliments to whoever workshopped that pearler in the marketing department (or whichever AI drafted it for them). The audacity deserves its own support category, though I wonder whether you'd file it under flexible Core funding, or lock it away in restrictive Capacity Building?

I note the new plan variation pathway is available to "high support needs participants" who meet a certain (suspiciously precise) funding threshold of $215,030. I also note it applies only to those receiving 24-hour funded support at a shared ratio of at least 1:3. I'd like to flag, for the record, that I've been providing support at a ratio of 1:1 for two decades, unpaid. As I am a reasonable person (and by all accounts for the last 20 years have been necessary), I am not requesting backpay (although I remain open to the possibility). It appears, however, that in providing care unpaid, I have inadvertently done my loved one a disservice — undermining the very funding and protections your safeguard document is meant to guarantee them. I am still ruminating on the observation that "other parts of the plan will not be impacted" and remain, notably, uncomforted.

I was especially moved by the worked examples you provided. On face value, I'm sure they're lovely people — albeit imaginary, and still luckier than most actual disabled people in the NDIS.

Correct me if I've misunderstood (note: I've added a little context under poetic license to assist my understanding). Daniel had his community participation budget halved. He lodged the plan variation request on day 88 (of a 90-day window). Daniel is high needs and does not have any Support Coordination funding left in the current instalment, so his plan nominee/carer had to write the s47a on their own (more free labour, more mental load) whilst, I'm assuming, the carer was concurrently caring for Daniel in the hours where his funding had been cut (the reason for the s47a — ironic much?). Marching on, the NDIA took 21 days to assess the s47a (I reckon they're going to be busy with these, so they've allowed them the maximum timeframe you mentioned), then — oh my gosh — another 21 days for a decision. Phew, what a marathon. Ultimately, after 130 days (a squeak over 4 months) on reduced funding (with no reduction in need), Daniel's plan was handed back to him with funding for a third of what he lost. The add back was calculated by how many hours Daniel would now be spending at home at a lower support ratio than when he was in the community (I see what you did there). Is this another bit of genius marketing spin, where you lock away disabled people in their houses with less support ratio/oversight and call it a Safeguard? This sounds like Uber surge pricing, but in reverse: is the hypothesis that the less Daniel can do, the cheaper he becomes to support. Am I wrong?

I can't quite wrap my head around the example of Amina, who, it appears, was assessed, found 'eligible-adjacent' (you can borrow that new term if you like — you're going to need it), and yet declined for a s47a, because the math said she was both essentially "not enough" and "fine" at the same time — impressive multitasking from a spreadsheet with a marketing degree. That algorithm's really earning its subscription fee this week.

Now back to my original reason for writing to you today. As enticing as the offer is for me to continue in my present role and expand on the scope (yet again), I respectfully decline.

Thus, I tender my resignation with a reasonable 7 calendar days' notice, effective 1 October 2026, to align with the change date you've proposed, and so we don't get into a kerfuffle. I appreciate this notice period may be problematic; however, I don't recall a notice period being specified in your assumed agreement for my voluntary, unpaid, informal care — so I've self-assessed that 7 days represents value for money (for you): effective (for me), albeit not beneficial to my loved one. I trust the Department will find this easy to absorb, given how comfortably it has already absorbed the difference between "reasonable and necessary" and "reasonable and necessary, within a budget."

I won't be available for handover. There isn't one. That was rather the point of me in this role. I thank you for the opportunity over the last 20 years — it's taught me a great deal, mostly about spreadsheets, support ratios, and the outer limits of my own patience.

With the composure of someone who has read the Intensive Pathway Safeguard document more times than the person who wrote it (or whoever proofread what the AI drafted),

sincerely,
A Carer

This letter is satire, written by a carer, and reflects one carer’s experience. Names in the examples are illustrative.

05

Take action

One day. One clear point. Choose how you’ll stand.

0 carers, participants and supporters registered nationwide

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Strike or support

Help The National Carer Strike Committee coordinate numbers, timing and office information.

Where you are

We collect only these details to coordinate the action. Never personal health or diagnosis information.

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Tell another carer

Don’t have someone to bring? Come anyway.

Not every carer has someone free to bring on the day, and not every supporter is a carer at all. That doesn’t mean you sit this one out. If you want to be counted, feel seen, and stand with carers — register and show up at your local federal electorate office too. Numbers are the whole point.

06

Questions, answered plainly

What is the NDIS Carer Strike?

Up to 6-hour nationwide withdrawal of unpaid care labour from 9am to 3pm local time on 1 October 2026. Participating carers will take NDIS participants, with informed agreement and advance notice, to their local federal MP’s electorate office.

Why are carers striking on 1 October 2026?

That is the date the government’s funding changes take effect. Carers have covered shortfalls unpaid for years; for one day, government will be asked to manage the practical result itself.

What NDIS funding cuts start 1 October 2026?

Funding for social and community participation supports is being cut by up to half. This is the money behind community access, transport, one-on-one outings and everyday participation; personal care and daily living supports are not touched.

How can I support the NDIS Carer Strike?

Register as a carer, participant, family member or supporter. You can also contact your MP, share the campaign and help someone participate safely and with informed agreement.

Is this a strike by paid support workers?

No. This is an unpaid carer action. Under Australian carer legislation, a carer is someone who provides unpaid care and support to a family member or friend with disability — the moment a person is paid to provide that same support, they are legally a support worker, not a carer. This strike is carers withdrawing their own unpaid labour. It does not involve, and is not asking, paid support workers to withdraw paid services.

Read the legislation: NDIS Act 2013, s 9 — definitions Carer Recognition Act 2010, s 5